
12:50
This meeting is sponsored by Alexion UK Ltd and Ipsen Ltd UK.For further information please contact:Melissa GirlingAlexion LtdMelissa.girling@alexion.com07850 906763Euvian Tan+44 (0) 7584 230 845euvian.tan@ipsen.com

38:35
What was the cause of death in child with chondrodysplasia punctata? Are contractures typical for this type CP?

54:41
Great talk Helen; nice overview of the complex bone service

54:41
Thank you

54:54
Great presentation

55:05
thank you!

57:30
thank you Helen, excellent presentation and left me wondering how advice about CPR/ACPs are planned for these children

01:27:46
fascinating and informative thank you.

01:28:03
Great presentation Melita and nice to see on line.

01:28:11
Are there any strategies to increase the number of specific treatments available for patients with rare bone disorders? For academic research/industry or at a regulatory/policy level?

01:28:20
thank you for a great talk

01:29:02
Thank you very much, dear Melita!

01:29:16
really enjoyed both the lectures. Thanks so much

01:29:46
Is final height the key outcome for patients affected with achondroplasia from their own perspective? What do patient groups say?

01:29:49
really gives hope for the future

01:31:22
thank you, great talks

01:32:18
Thank you, that's very informative

01:34:46
Thanks so much for today. I'm sorry but I need to leave now

01:36:52
thank you so much. I'm sorry to have to leave.

01:37:40
Thank you to the organisers and speakers today- great talks and happy Rare Diseases Day.

01:37:40
I am really sorry to have to leave but have another commitment at 2pm.

01:55:58
Thank you very much!!