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This meeting is sponsored by Alexion UK Ltd and Ipsen Ltd UK.For further information please contact:Melissa GirlingAlexion LtdMelissa.firstname.lastname@example.org 906763Euvian Tan+44 (0) 7584 230 email@example.com
What was the cause of death in child with chondrodysplasia punctata? Are contractures typical for this type CP?
Great talk Helen; nice overview of the complex bone service
thank you Helen, excellent presentation and left me wondering how advice about CPR/ACPs are planned for these children
fascinating and informative thank you.
Great presentation Melita and nice to see on line.
Are there any strategies to increase the number of specific treatments available for patients with rare bone disorders? For academic research/industry or at a regulatory/policy level?
thank you for a great talk
Thank you very much, dear Melita!
really enjoyed both the lectures. Thanks so much
Is final height the key outcome for patients affected with achondroplasia from their own perspective? What do patient groups say?
really gives hope for the future
thank you, great talks
Thank you, that's very informative
Thanks so much for today. I'm sorry but I need to leave now
thank you so much. I'm sorry to have to leave.
Thank you to the organisers and speakers today- great talks and happy Rare Diseases Day.
I am really sorry to have to leave but have another commitment at 2pm.
Thank you very much!!